Wednesday, September 23, 2015

Getting nowhere with doctors

The past few weeks I have been feeling a little better and up to venturing to the doctors. Before that going out at all has been horrible so I didn't get around to going to see the doctor until this past fortnight. 
I saw my regular GP and she ran some tests. Turns out my histamine levels are extremely high - 13,300 instead of the regular 0-100. No wonder my skin has been insanely bad! 

So I left that appointment feeling incredibly confused and a bit angry at myself as I have been eating a strict paleo diet and parts of the diet - bone broth, sauerkraut, and kefir which I was eating daily, are all very high in histamines. Therefore i have been making this steroid withdrawal period even worse by the foods I have been eating. 
But now I know so at least I can move forward from here with a more informed approach. 

I then went to see an Immunotherapist and after a long appointment i left with no answers and three scripts for oral steroids and steroid creams and antibiotics! He did not take on board at all what I said about reacting to the steroid medication and that even the strong steroids had lost their effect. 
So I left pretty discouraged and confused once again and have chosen to not fill any of those scripts for anything he prescribed. 

Next up I have seen a Naturopath and this was a little more promising and hexy! I know that a more natural approach of internal healing is the way to go so I tracked down a Naturopath that sounded well qualified and went to see her. She was a little shocked at the state of my skin which never makes me feel good. I wish I could find someone who specialises in eczema! She attempted to do a food allergy test by pricking my fingers but my blood kept clotting so the test was unsuccessful which was a real shame as it tests for 48 foods and tells you how allergic you are to them. That would be amazing to know! 
She talked me through my diet and a stack of nutrients and supplements I should be taking so I now have a fridge stocked full of them and an empty bank account. I have to go back and see her in a month so I'll give it a go and see how this coming month pans out. 

What a journey!

Next up I'm having a cat scan to investigate the swollen lymph nodes in my groin and armpits. 

My skin right now is super inflamed on my hands and wrists and the backs of my knees. I put on a skirt today that had some dust of it so it felt like I was going to tear my legs to pieces they reacted so badly. My neck and face have gone down a lot which is great as I feel much more confident to go out. 
My feet and hands are still swollen and I am still incredibly cold! I went to the beach today in pants and a long sleeve top and sat in the full sun for hours and still couldn't get warm! Such a strange feeling. 

I have now lost almost 10kg in the past few months and now weigh 56kg. I feel like I am going to keep losing it as I feel so restricted in what I can eat. It's funny how I always wanted to lose weight and now I am and I'm not sure I actually love it that much as I really don't want to be just skin and bones. I am going to make the most of it though and start getting into more Pilates so I can tone my body more. 

Just trying to find the positives in every day and everything that comes my way. 


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